I have
been shedding many tears these past couple of days. A good portion have came
from thinking about the long and uncertain road ahead for our daughter. But
perhaps an equal or even greater breakdown of emotion comes from understanding
the distress and heartbreak you experience for our family. Your spoken and
unspoken words have done a deep work in our hearts, to really connect us to the
love of our Heavenly Father.
We got
the alarming news today that the leukemia Ava has is actually the worse of the
two categories (AML). Due to the many uncertainties of this type, we were
led to make atransfer to Lurie Children's Memorial Hospital in Chicago. We have
been nicely situated here since 1:30pm (Friday).
Ava had
a PICC line inserted, which means she can receive medicine and have her blood
drawn without any more needles! We were told that children need help with two
important things to do extra well during these trials: 1) to know that their
parents are with them, and 2) managing the pain. We're totally committed
to being with her and for her, and no more needles is such a huge blessing.
The
chemotherapy begins tomorrow, and continues each day for the next ten
days. We'll try our best to take it one day at a time. But with
AML, Gwen is already being considered as a top candidate for bone marrow
transplant (if needed). What an amazing story should she actually be a
match! There's a one in four chance, but we're trying not to focus on all
the various numbers and keep our eyes on Jesus.
What we
do know is that Ava and Gwen love each other deeply with what I know is a love
from the Lord. That alone provides us with so much encouragement and joy. In
Christ, we are all a perfect match.
We'll
keep you updated, and feel free to share this with anyone you'd like. We are
truly in need of prayer, grace, and God's leading. But we don't want to keep it
to ourselves. These blessings must be turned back to God to give Him praise.
Thank you for helping us do that!!
Love,
The Lee's
1 comment:
Brother Mike and Sister Esther, Ava and Gwen!
Our hearts are with you! Be brave, for the smile of Ava! I will send Brianna's clothes for Gwen. Alice and Brianna will write cards to Ava, who is their best friend with whom they have had so much fund to "mess things around" :) say hi to Ava! we love her!
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