Friday, January 29, 2016


We just got done with our 4th movie night of the week. Currently the girls are still up playing. Teeth are not brushed, meds have not been taken, their games are nowhere near finished and there are bursts of yelling every now and again. It's all good though. The view from this bed down to the floor where they play is lovely. So incredibly beautiful.

The results are back. The skin lesion that was biopsied is leukemia cutis. I wouldn't google it. It's not an encouraging read. But, the grace part of it is that her MRD status remains stable. We are hard pressed to make the right choice, the best decision for our love, Ava.

Since her MRD is stable, and the risk of relapse after a second transplant is high with leukemia cutis, we are opting to continue watching and waiting. We will go to that place, if we need. But for now, we will enjoy the view.

Thank you for your prayers. We need them so much.

First words out of her mouth as she looks in the mirror. "Oh. My. Goodness."

The more I get to know her, the more I am convinced she will change me; she will change the world.


Joo Park said...

I am in love with her Ava, too!!

Laurie Hartwig said...

She has already changed the world. Ava is such a treasure, may her light shine upon all she touches