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Sorry for the late update but flow cytometry tests have revealed no evidence of disease! We are beyond thankful for this news. We will be treating Ava's issues as GVHD and will move ahead with steroid treatment. She will be on the same dose as she was previously on with her gut GVH. Thank you for interceding on our behalf!
Doctors just rounded and we are experiencing some emotional ups and downs. The first team rounded and said relapse was high on their list. Five minutes later, her transplant doctor came by and said that the slides do not show evidence of disease but will need to be looked over by a pathologist. However, her counts have dropped overnight so we will continue to be on watch for any signs of relapse. In the meantime, there are many tests being done to find the cause of the effusion. We ask for prayers that this is not a relapse. Thank you so much.
I can't even explain the fear and heartache. 500 ml of fluid surrounding Ava's heart was just drained. She is still intubated and sedated so that the fluid from her right lung can be drained. Doctors say she was experiencing cardiac tamponade and without the swift measures we took today, her heart would have stopped. We thank God her condition was treated in time. Please, continued prayers as we search for the cause. They can range from viral to GVHD to relapse. Thank you so much for carrying us. I feel like shriveling up and dying but feel the power of your prayers.
A couple times, Ava broke out of her sedation. So they increased the medication. But even after that, she woke up and was agitated. It seems that the tube induced the gag reflex and she threw up quite a bit, about four heaves. The nurse immediately suctioned the tube, hoping that there was no aspiration, which can lead to a pneumonia.
Her breathing sounds pretty clear, and they increased the medication further so she's sleeping. Still waiting on the chest tube to be put in so that her the fluid around her lungs can be drained.