Friday, March 4, 2016

Praise Report

Praise Report! Friends, for years I've been praying for Ava to be healed. I bent my head low expecting God to lift us back up to health. That was my idea for His good, pleasing, perfect Will.

I am learning slowly but, painfully, surely that I know nothing of how magnificently perfect His Will truly is. I want to freaking karate kick something from the anger and hurt that this disease has caused. But I am humbled that I know absolutely zero of the workings of God's mind. But I do know that He is good. And I stand amazed at how He answers our prayers. I want to thank Him even when it's all I can do to muster up a whisper of praise.

Today's Praise Report: No chloromas in the brain! And the chloroma that they thought was in the thecal sac is actually next to it! Even though it's pretty bad that there are countless chloromas there, it is good news to hear that it is not in an immediately concerning location. Ava also had a visit from Quest Church's Children's pastor who talked with Ava about her faith and her desire to be baptized. Ava wants to make the decision to show that she knows and loves Jesus and trusts that He loves her so much that He made a way to be with her eternally. She is waiting on the baptism until her grandparents and other family members can gather to be there with her. THANK YOU for your prayers, from the bottom of my mama's heart.

Today's Prayer Request: There seems to be a chloroma that is quickly forming and growing on her rib cage. Every time I see it, my body tenses up as I imagine all the other cancerous cells gathering up every minute to form masses that threaten to disfigure and harm my girl.

Today's procedures consisted of a lumbar puncture and a bone marrow aspirate to see if there are any cancerous cells growing in her marrow and spinal fluid. She also got one dose of chemotherapy. We pray that her marrow and spinal fluid continue to show no progression of disease.

I will shamelessly ask you to continue praying for our girl, Ava.



video
The Lord is My Shepherd

#seattleorbust

First time ice skating ever! They couldn't get enough. I didn't know that you weren't supposed to exercise before a PET scan though...oops.


Ava braving the PET scan

Ava consoling Gwen when she had to get labs drawn to check for any correlation between her allergies and malignancies. 

Listening to Pastor Katey read a bible story and explain baptism.



5 comments:

Anonymous said...

Ava Has such beautiful and exquisite faith and it brings such joy and tears to hear that! Yes only our Good Father can do that !Thanks for the beautiful post !
May it console you, if just a fraction, that some of us are in agony as we bear only a portion of this burden of your family's great trial through our constant prayers and thoughts and hope in His perfect Love and faithfulness.
Love, SK.

Saras said...

Beauty for ashes. Sending hugs and prayers of thanks, Bora.

Laurie Hartwig said...

I will pray as never before, Ava is a shining light in what can sometimes be a dark and lonely place. May her light shine bright for all to see.

Peter said...

Prayers are flowing from our hearts and from all over the world to God in behalf of Ava and your family! There was congregational prayer in Singapore for you too!

Anonymous said...

My family lives in Indonesia and we are praying for your little girl every night. "Whom have I in heaven but you? And there is nothing on earth that I desire besides you. My flesh and my heart may fail, but God is the strength of my heart and my portion forever." -Psalm 73:25-26